Elder-caregivers

MerryHolidays

(7,715 posts)

14. Support groups

Thu May 6, 2021, 02:45 PM

May 2021

Google something like this for support groups: "lewy body dementia support groups"

There are a lot of them out there that can be good resources. Here are a few that I found:

https://www.lbda.org/local-support-groups/

https://www.ucsfhealth.org/conditions/lewy-body-dementia/support

https://www.nia.nih.gov/health/how-care-person-lewy-body-dementia

I find that research is often therapy when solving a problem (but, then again, I suppose I should since I'm a lawyer and that's kinda' what lawyers do!)

Take care, bro.

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Fuck me, man! I don't wish this shit on anyone. [View all] Glamrock May 2021 OP

Been there, done that. Texaswitchy May 2021 #1

I feel for you. Mom died 7 years ago but she lived with Alzheimer's for about 15 years before that. alwaysinasnit May 2021 #2

So sorry to hear this jimfields33 May 2021 #3

Yes, look into hiring help. Diamond_Dog May 2021 #4

At the moment, me n Mrs. Glam both work at home. Glamrock May 2021 #5

Some other folks who have gone through this here are offering excellent advice. Diamond_Dog May 2021 #13

Thanks mama. Glamrock May 2021 #35

Taking care of elder people is never easy and not everyone is suited to do it. appleannie1 May 2021 #20

Seriously, start researching nursing homes Freddie May 2021 #6

I second that suggestion spinbaby May 2021 #8

Sorry to her that. I had older parents and lost them a long time ago. I have always been jealous brewens May 2021 #7

I feel for you... pnwest May 2021 #9

Glam, take care of yourself and then the family MerryHolidays May 2021 #10

Respect for taking this on. Just know your limits. Be strong. Give Mrs Glam lots of hugs. BoomaofBandM May 2021 #11

I know what you mean. Buckeye_Democrat May 2021 #12

Support groups MerryHolidays May 2021 #14

I worry about burdening my kids with something like this. CentralMass May 2021 #15

my advice- the sooner the better. mopinko May 2021 #16

It's fucked. I was a long term care nurse for eleven years. ismnotwasm May 2021 #17

I think of you and Mrs. Glam often... MontanaMama May 2021 #18

DON'T try to do this yourself. WinstonSmith4740 May 2021 #19

Here's a suggestion - your area may have an adult daycare center FakeNoose May 2021 #21

The stories I see here are exactly why PoindexterOglethorpe May 2021 #22

that is what Robin Williams had Skittles May 2021 #23

Whatever's going on man just come back and check in with us... diverdownjt May 2021 #24

We had to put my MIL in a nursing home because of Greybnk48 May 2021 #25

Been there done that, Ferryboat May 2021 #26

Look specifically for a memory care facility. StarryNite May 2021 #27

everybody has stories Bmoboy May 2021 #28

That's rough. I had to take care of my grandma who had that. Rizen May 2021 #29

I can relate to what you are going through, my wife's parents have dementia, 90+ years old turbinetree May 2021 #30

My mother didn't have Alzheimer's, but what she had was virtually indistinguishable. BobTheSubgenius May 2021 #31

Take care of her, do all you can for her. Under The Radar May 2021 #32

Yes, it is. Holding you and your family in my heart for strength. n/t TygrBright May 2021 #33

I am so very sorry. jmbar2 May 2021 #34

Rule one: No fucking guilt! flotsam May 2021 #36

Tough times, but, you'll do better than you think. blm May 2021 #37

That is some tough news Glam. Swede May 2021 #38

There's lots of help out there. Facilities with Memory Care units can be excellent resources. littlemissmartypants May 2021 #39

My father-in-law had it leighbythesea2 May 2021 #40

❤️ ❤️ ❤️ ❤️ ❤️ ❤️ ❤️ ❤️ ❤️ ❤️. We are ALL here for you. a kennedy Jun 2021 #41

I hear you. My MIL has dementia, but I don't know if it is Lewy body. Ilsa Jun 2021 #42

I hear you. My MIL, with dementia, has had a string of successive Ilsa Nov 2021 #43

How are you holding up, Glamrock? JudyM Dec 2021 #44

as I read this I wondered onethatcares Jun 2024 #45

I'm scared too XanaDUer2 Jun 2024 #46