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7. We have been there
Wed Jan 8, 2025, 10:38 PM
Jan 8

Our son was diagnosed with this during his gap year between college and grad school. He graduated with degrees in physics and math and had his first episode in 2021. To make a long story short, the drug Clozapine gave him his life back. After 3 hospital stays and two failed antipsychotics, they finally put him on clozapine. He was released from hospital in January 2023 and began the drug around that time. He lost 100 lbs and trying to starve himself in the hospital. The change with clozapine was almost immediate. He began lifting weights again, gained back the weight, and completed a masters degree a year later. Now he is enrolled in a Ph.D. program in math. Yes, we gave him full support, which is crucial, but without that drug, he would have zero chance of staying out of the hospital. I recommend that you check out the Team Daniel website for full explanation about clozapine and its usage. My son's side effects are minimal. The link provides information about the controversy concerning clozapine. The fact that they make it so difficult to obtain is nothing short of criminal. My roommate from grad school has a son who had the exact same experience as ours did, with similar results. It is not hopeless.

https://www.bloomberg.com/news/newsletters/2024-12-19/schizophrenia-drug-clozapine-hard-to-get-due-to-strict-fda-rules

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