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erronis

(24,605 posts)

6. I've found, over the last 10+ years, that personalized caring has decreased tremendously.

Mon May 25, 2026, 02:22 PM

Monday

Everything has shifted to a very limited insurance-dictated window for seeing the patient and then dealing with all the forms. The continuity of care has disappeared.

The primary care doctors are mainly gate-keepers for the insurance companies. They may really want to know their patients, but they aren't reimbursed for that time.

Most optometry-ophthalmology practices have been taken over by the big corporations who have no connection to the patients.

Super-specialized practitioners are making big bucks, but there's no "whole" patient approach. My cardiologist doesn't want to know about my blood cancer numbers (oncologist) - and vise-versa. Don't get paid for dealing with things outside of their ICD codes.

In these cases we need a personal hero - a doctor or nurse who knows the system and will take the time to advocate for our particular case. Sometimes good hospitals have some type of ombudsman role, perhaps you can find one for your eye problems. (I have glaucoma and early macular degeneration - runs in family.)

Good luck!!!

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ultralite001 oberle KS Toronado Bumbles niyad love_katz mountain grammy LuckyCharms pat_k Dixc appalachiablue Useless in FL mahina

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I'm freaking out a bit. [View all] LuckyCharms Monday OP

We're pulling for you. ❤️ underpants Monday #1

What underpants said. irisblue Monday #2

Yes. Harker Monday #4

+1 pat_k Monday #45

Sending a warm hug your way Lifeafter70 Monday #3

Hugggggs. We are all here for you. niyad Monday #5

I've found, over the last 10+ years, that personalized caring has decreased tremendously. erronis Monday #6

Can't overestimate how critical being your own advocate is. pat_k Monday #50

With my dad and now my husband, I've found they can't focus on telling the doctor summer_in_TX Monday #87

Excellent points I need to do a better of keeping in mind. pat_k Yesterday #92

Grrr. summer_in_TX Yesterday #95

It's scary Marthe48 Monday #7

Sending hugs cate94 Monday #8

Next visit SuzyandPuffpuff Monday #9

A nice reminder that there are sicker people than me here on DU. KS Toronado Monday #10

We don't communicate often, but I read your posts... LuckyCharms Monday #48

OK Lucky practice what you preach .........."You hang tough, OK?" KS Toronado Monday #51

You better be doing the best you can! LuckyCharms Monday #52

I keep you in mind Marthe48 Monday #75

Please hang in there, KS Toronado Niagara Yesterday #102

I hear you and I understand FakeNoose Monday #11

Not trying to complicate your anxiety but... littlemissmartypants Monday #12

You know, on this exact date last year, 2025... LuckyCharms Monday #66

Did you find a new neurologist? Did anyone actually share with you that you... littlemissmartypants Monday #70

LMSP.... LuckyCharms Monday #71

Don't make me have to come over there, LC! littlemissmartypants Monday #72

I'm ringing my doorbell button!!!! LuckyCharms Monday #73

I'm paddling as fast as I can. littlemissmartypants Monday #74

One oar? LuckyCharms Monday #76

😉 littlemissmartypants Monday #77

Good luck, seriously! But you should tell your wife. She needs to know. LymphocyteLover Monday #13

Sending hugs. iluvtennis Monday #14

I sincerely hope your medical providers can find solutions Tanuki Monday #15

The Ohio Low Vision Agency were immensely helpful Marthe48 Monday #79

Can we find a patient advocate for LuckyCharm? Bobstandard Monday #16

I think that is a very important suggestion. niyad Monday #26

I do, too. calimary Yesterday #94

🫂🫂🫂🫂🫂🫂 Chicagogrl1 Monday #17

Sending hugs to you ,Lucky, debm55 Monday #18

I'm so sorry you have to go through this. Aging is awful Mr. Mustard 2023 Monday #19

I'm sorry you're going through this, LuckyCharms. Buddyzbuddy Monday #20

Sending you positive vibes. greatauntoftriplets Monday #21

I'm with whoever said stage left Monday #22

I wish I had the cure for you blue-wave Monday #23

I have AMD, the wet form in my left eye for which I receive injections Joinfortmill Monday #24

Your friends here care about you, amigo JoseBalow Monday #25

Oh my goodness! I certainly hope everything is figured out and worked out. LoisB Monday #27

We hear you markie Monday #28

Uhm, kozar Monday #29

Uhm, who said I was confused? LuckyCharms Monday #30

Ok you're freaking out, kozar Monday #34

Ok kozar... LuckyCharms Monday #35

Post removed Post removed Monday #37

Bye now. LuckyCharms Monday #38

Post removed Post removed Monday #53

!!! LuckyCharms Monday #57

You were right to speak up. The last thing you need or deserve Tanuki Yesterday #93

Sorry about all the anxiety. Figarosmom Monday #31

I don't blame you for freaking out or venting Niagara Monday #32

One eye blind myself Bmoboy Monday #33

I wish you the best. LuckyCharms Monday #83

That's a huge load of stress. So much Ilsa Monday #36

Several of those things are related to diabetes. Ms. Toad Monday #39

My best a1C recently has been 6.8... LuckyCharms Monday #42

It's not clear to me whether the impact of tight control on vision is because of the insulin - Ms. Toad Monday #68

You always post great helpful advice. Thanks so much. LuckyCharms Monday #69

All the best to you Lucky and just one thing mountain grammy Monday #40

Oh she knows about it, mountain grammy... LuckyCharms Monday #41

Good.. So glad to see this. mountain grammy Monday #44

I can relate LC. Having issues as well and my eye doc retiring. Cataracts maybe.Blurry. Evolve Dammit Monday #43

Wishing you all the best richdj25 Monday #46

I know where you live and perhaps specialists are somewhat limited. Katinfl Monday #47

That might be the next step... LuckyCharms Monday #49

sorry you are suffering Kali Monday #54

Thanks so much, Kali. LuckyCharms Monday #55

diabetes is sure a suspect in degenerative eye things. rampartd Monday #56

LuckyCharms, I'm so sorry. I can't imagine. You are in my thoughts, and I'm glad Scrivener7 Monday #58

I'm so sorry you're going through this, Lucky. Diamond_Dog Monday #59

Your typing is really good for someone with bad floaters! True Dough Monday #60

asd jb kkarfty!!!!!111!!! LuckyCharms Monday #61

Hold on! True Dough Monday #62

!!! Kali Monday #63

loma... LuckyCharms Monday #64

I'm so sorry, LC. Sending hugs and healing vibes. My sister's dealing with multiple eye problems, too, highplainsdem Monday #65

Thanks so much highplainsdem... LuckyCharms Monday #67

Hugs and good strong wishes some_of_us_are_sane Monday #78

I hope the current doctors or maybe a new one, can sort things out for you. I understand the anxiety appalachiablue Monday #80

Good vibes, good wishes, and big hugs to you, Lucky Bayard Monday #81

LuckyCharms have some healing vibes...... pdxflyboy Monday #82

Oh hugs, Lucky WhiteTara Monday #84

I hope you find a specialist who will take his time and figure out if a transplant would help. 58Sunliner Monday #85

Lucky, it's okay to be scared. hamsterjill Monday #86

Healing vibes on the say to you SheltieLover Monday #88

Sending big hugs, LC. summer_in_TX Monday #89

When the thoughts get negative practice redirecting your thoughts oldmanlynn Monday #90

Smoke more pot. OAITW r.2.0 Yesterday #91

Thinking of you friend. Dunc Yesterday #96

Completely understandable orangecrush Yesterday #97

I hope this will help. Trueblue Texan Yesterday #98

My good friend. I am very sorry to learn of you going through all this. NNadir Yesterday #99

Effing diabetes! Healing and calming energy to you LC 💚🩵 Clouds Passing Yesterday #100

Hang in there, my friend UpInArms Yesterday #101

I am sorry this is happening to you Bettie Yesterday #103