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erronis

(23,660 posts)
25. I know you're a spring cluck, but aren't you on Medicare? And if so, is it covered?
Sun Mar 15, 2026, 12:29 PM
18 hrs ago

I just started a new immunotherapy drug for CLL (leukemia) that is listed at $18,000 per month (60 tablets) - taken the rest of my life. My copay per month would be around $2,000 which wouldn't be possible.

Someone mentioned a grant that would cover the copay and I am extremely grateful to the generosity of the grantor. The other benefit is that the first month's copay covered my "donut hole" so I have no more "covered" drug payments this year.

The US healthcare system, especially pharmaceuticals, is extremely messed up.

Anyway, I wish you the best - especially since I need your frequent excursions into science and other strong opinions.

Recommendations

2 members have recommended this reply (displayed in chronological order):

I want you to stick around. murielm99 19 hrs ago #1
I wish you the best of luck Nnadir. Swede 19 hrs ago #2
The etymology of my screen name is rather simple. NNadir 19 hrs ago #5
Do you know that Jeff Tiedrich (smirking chimp) has a substack niyad 17 hrs ago #34
I know 2 people who just had surgery to replace that valve. Both doing fine surfered 19 hrs ago #3
Yes, I've looked into it. I find it amazing that it can now be done without open heart surgery, via catheter. NNadir 19 hrs ago #6
I hope it is approved and that it works. Even a few years more, once we are quite elderly, is a true gift. Let us know ratchiweenie 19 hrs ago #4
This is purely anecdotal... LuckyCharms 19 hrs ago #7
Keep up with this optimistic anecdotal stuff and... NNadir 19 hrs ago #9
. LuckyCharms 19 hrs ago #10
Hey, who said you could have my dark thoughts??? niyad 17 hrs ago #32
Oh, geez, do I have to separate you two AGAIN? niyad 17 hrs ago #31
You are not allowed to leave, just yet. Polly Hennessey 19 hrs ago #8
Keep us informed. I hope this works for you. OLDMDDEM 18 hrs ago #11
Need ya to stick around and keep irritating folks with the facts and edumacating the rest of us ;). Good luck !! n/t Cheezoholic 18 hrs ago #12
I got my aortic valve replaced 5 years ago. EndlessMaze 18 hrs ago #13
Please stick around as i enjoy your science writings n/t gay texan 18 hrs ago #14
Positive thoughts for approval. Whatever treatment you ultimately choose, I pray that it LoisB 18 hrs ago #15
I am sorry to hear that NNadir jfz9580m 18 hrs ago #16
Hoping for the best for you! AltairIV 18 hrs ago #17
Mine was rejected. I ended up with Repatha. My LDL's are negligible at this point. Gore1FL 18 hrs ago #18
I wish you the best. area51 18 hrs ago #19
So . . . AverageOldGuy 18 hrs ago #20
So we can figure a three year review for possible approval? Norrrm 18 hrs ago #21
Nothing to add to all of the already heartwarming posts, but hamsterjill 18 hrs ago #22
Ask to see an interventional cardiologist about TAVR dalton99a 18 hrs ago #23
I've already looked into this case. It's intriguingly cool. NNadir 16 hrs ago #36
I wish you the best LetMyPeopleVote 18 hrs ago #24
I know you're a spring cluck, but aren't you on Medicare? And if so, is it covered? erronis 18 hrs ago #25
Thank you. I needed this today. h2ebits 18 hrs ago #26
All the best to you jfz9580m 17 hrs ago #27
Thanks for your thoughts. h2ebits 17 hrs ago #30
NN, I'm befuddled by this and frustrated with my lack of a response for this news. littlemissmartypants 17 hrs ago #28
Rooting for you, NNadir. blm 17 hrs ago #29
Vibes for the very best possible outcome, my friend. niyad 17 hrs ago #33
Best of luck. I have 4 cardiologist and I proved them all wrong. multigraincracker 16 hrs ago #35
Do not short change yourself - valve replacements are done every day. harumph 16 hrs ago #37
I'm sure you've looked into it. What are the outcomes of the replacement vs the injection for a man of your age and retread 16 hrs ago #38
It sounds to me as if you might have high lipoprotein (a), which is genetic. femmedem 11 hrs ago #39
Make sure they are measuring your apolipoprotein B (apo(b)) Ms. Toad 9 hrs ago #40
Wishing you good health for years to come! yardwork 9 hrs ago #41
not sure which is worse Skittles 9 hrs ago #42
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